Understanding Legal Aspects of Care



Understanding Legal Aspects of Care


Abigail English, JD

Rebecca Gudeman, JD





INTRODUCTION

Whenever a health care practitioner treats an adolescent or young adult, it is essential the practitioner have a clear understanding of the legal framework within which care is to be provided. The laws related to health care delivery differ based on age, legal status, and geography. This chapter will discuss the legal framework in the United States.

In the United States, the governing laws for adolescents and young adults (AYAs) who are aged 18 years or older are typically the same as those for other adults. For adolescents who are minors—younger than age 18 years in almost all states—the laws may be different. The legal issues that arise most frequently fall into three specific areas:



  • Consent: Who is authorized to give consent for the adolescent’s or young adult’s care and whose consent is required?


  • Confidentiality: Who has the right to control the release of confidential information about the care, including medical records, and who has the right to receive such information?


  • Payment: Who is financially liable for payment and is there a source of insurance coverage or is public funding available that the adolescent or young adult can access?


LEGAL FRAMEWORK

Over the past few decades, the legal framework that applies to the delivery of adolescent health care in the United States has evolved in several significant ways.



  • Courts have recognized that minors, as well as adults, have constitutional rights although there has been considerable debate concerning the scope of these rights.


  • All states in the United States have enacted statutes to authorize minors to give their own consent for health care in specific circumstances.


  • The laws governing the confidentiality and disclosure of health care information have evolved in ways that affect AYAs.


  • The financing of health care services for all age groups and income levels is undergoing major change, at an increasingly rapid pace, which has had and will continue to have a significant impact on adolescents’ and young adults’ access to health care.

Within this legal framework, the application of the law is shaped by ethics and policy. Health care practitioners may be bound to comply with certain ethical principles as part of their professional obligations and medical license or with certain policies as part of an employment contract. In addition, several important international documents that are not legally binding in the United States, such as the United Nations Convention on the Rights of the Child (http://www.unicef.org/crc/index_30160.html) and the European Convention on Human Rights (http://www.hri.org/docs/ECHR50.html), may provide guidance, particularly as awareness increases of health care as a human right. While often the ethical principles, policies, and other guidance reinforce the law, their intersection will influence application of law, particularly where the law allows for practitioner discretion or is open for interpretation.


Constitutional Issues

Beginning with In re Gault (1967), in which the US Supreme Court stated that “neither the Fourteenth Amendment nor the Due Process Clause is for adults alone,”1 the court has held repeatedly that minors have constitutional rights. The Gault decision, which accorded minors certain procedural rights when they are charged by the state with juvenile delinquency offenses, was followed by others recognizing, in Tinker v. Des Moines Independent School District (1969),2 that minors had rights of free speech under the First Amendment and, in Planned Parenthood of Central Missouri v. Danforth (1976)3 and Carey v. Population Services International (1977),4 that they also had privacy rights. Although the Supreme Court subsequently addressed a wide variety of constitutional issues affecting minors and rendered some decisions that were more equivocal about the scope of minors’ constitutional rights, the basic principles articulated in the early cases still stand.

One area of frequent constitutional litigation has been the rights of minors with respect to reproductive health care, particularly abortion. The early cases, Carey and Danforth, clearly established that the right of privacy protects minors as well as adults and encompasses minors’ access to contraceptives and the abortion decision. The subsequent history of constitutional litigation with respect to abortion has been complex. After the decision in the Danforth case, which held that parents cannot exercise an arbitrary veto with respect to the abortion decisions of their minor daughters, the US Supreme Court decided a series of cases—beginning with Bellotti v. Baird (1979),5 and continuing more recently
with Planned Parenthood of Southeastern Pennsylvania v. Casey (1992),6 and Ayotte v. Planned Parenthood of Northern New England (2006)7—addressing parental notification and consent issues related to abortion. The collective import of these cases has been that although a state may enact a mandatory parental involvement requirement for minors who are seeking abortions, the laws must include an exception when necessary for the preservation of the adolescent’s life or health and establish an alternative procedure whereby a minor may obtain authorization for an abortion without first notifying her parents.7 This alternative most often takes the form of a court proceeding known as a “judicial bypass.” In the bypass proceeding, a minor must be permitted, without parental involvement, to seek a court order authorizing an abortion. If the minor is mature enough to give an informed consent, the court must allow her to make her own decision; and, if she is not mature, the court must determine whether an abortion would be in her best interest.5 Many, but not all, states have enacted such parental involvement or judicial bypass statutes, some of which have been implemented, although others have been enjoined by the courts. As of February 2014, at least 38 states have laws in effect that require either the consent or notification of at least one parent; all but 1 of these states provide for a judicial bypass; all but 3 have an exception for medical emergencies; 16 include exceptions for victims of abuse, assault, incest, or neglect; and several provide for consent or notification of an adult family member other than a parent.8


State and Federal Laws

Although the constitutional litigation concerning minors’ rights in the reproductive health care arena has attracted significant attention, most of the specific legal provisions that affect adolescents’ and young adults’ access to health care are contained in state and federal statutes and regulations or in “common law” decisions of the courts. These provisions cover a broad range of issues related to consent, confidentiality, and payment, and are critical in defining the parameters of what providers are legally permitted and required to do. Therefore, practitioners providing services to AYAs must develop a familiarity not only with the general constitutional principles that have evolved in recent decades but also with federal laws and state laws, including court decisions, that apply in their own states.


CONSENT

The law generally requires the consent of a parent before medical care can be provided to a minor. There are, however, numerous exceptions to this requirement. In many situations, someone other than a biological parent—such as a guardian, caretaker relative, foster parent, juvenile court, social worker, or probation officer—may be able to give consent in the place of the parent. State law typically dictates which adults may provide substitute consent. Moreover, in emergency situations, care may be provided without prior consent to safeguard the life and health of the minor, although typically parents must be notified as soon as possible thereafter.

Other exceptions to the parent consent requirement that are highly significant for the AYA health care practitioner authorize minors themselves to give consent for their care. These provisions typically authorize minors to consent for their own care based on either the type of services sought or the status of the minor.

All states have enacted one or more provisions that authorize minors to consent to certain health services.9,10 These specific areas may include the following:



  • Emergency situations where care may be provided without prior consent to safeguard the life and health of the minor


  • Contraceptive care


  • Pregnancy-related care


  • Diagnosis and treatment for sexually transmitted infections, sometimes referred to in statutes as venereal disease


  • Diagnosis and treatment of either human immunodeficiency virus, or acquired immunodeficiency syndrome


  • Diagnosis and treatment of reportable or contagious diseases


  • Examination and treatment related to sexual assault


  • Counseling and treatment for drug or alcohol problems


  • Counseling and treatment for mental health issues

Few states have statutes covering all of these services. In many cases, the statutes contain minimum age requirements, which most frequently fall between the ages of 12 and 15 years.9,10

Similarly, all states have enacted one or more provisions that authorize minors who have attained a specific status to give consent for their own health care.9,10 The groups of minors most frequently given this authority include the following9,10:



  • Emancipated minors


  • Minors living apart from their parents


  • Married minors


  • Minors in the armed services


  • Minors who are the parent of a child


  • High school graduates


  • Minors who have attained a certain age


  • “Mature minors” who are explicitly authorized by statute to consent for care in a few states.9

Few states have enacted all of these provisions, and laws are frequently amended. Therefore, practitioners are advised to have current information about their state laws.


The Mature Minor Doctrine and Informed Consent

“Mature minor” is generally understood to mean a minor who, in the eyes of the medical professional, exhibits the maturity to authorize his or her own health care. Even in the absence of a specific statute, “mature minors” may have the legal capacity to give consent for their own care. The mature minor doctrine emerged from court decisions addressing the circumstances in which a physician could be held liable in damages for providing care to a minor without parental consent.9,11 In a few states, courts explicitly have chosen not to hold practitioners liable for delivering care to a “mature” minor capable of providing informed consent. The basic criteria for determining whether a patient is capable of giving an informed consent are that the patient must be able to understand the risks and benefits of any proposed treatment or procedure and its alternatives, and must be able to make a voluntary choice among the alternatives. These criteria for informed consent apply to minors, as well as adults. During the past few decades, diligent searches have found no reported decisions holding a physician liable in such circumstances solely on the basis of failure to obtain parental consent when nonnegligent care was provided to a mature minor who had given informed consent, although a few states have rejected application of the “mature minor” doctrine in particular circumstances. In most states, this suggests that unless a state has explicitly rejected the mature minor doctrine, there may be little likelihood a practitioner will incur liability for failure to obtain parental consent for care provided that the minor consents and the minor is an older adolescent (typically at least 15 years old) who is capable of giving an informed consent and the care is not of high risk, is for the minor’s benefit, and is within the mainstream of established medical opinion. Again, however, laws do vary from state to state; practitioners must be familiar with local requirements and should consider consulting with local legal counsel to obtain legal advice on this issue.

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Sep 7, 2016 | Posted by in ONCOLOGY | Comments Off on Understanding Legal Aspects of Care

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