The Care of American Indian and Alaska Native Adolescents and Young Adults
Anthony H. Dekker
Roger Dale Walker
Dennis K. Norman
Raysenia L. James
KEY WORDS
Aboriginal
Alaska Native
American Indian
Indian Health Service
Indigenous population
Sun Dance
Sweat lodge
Traditional Indian Medicine
American Indian and Alaska Native (AI/AN) youth (aged 15 to 24) living in the US are at high risk for serious health, social, and educational disparities. Many AI/AN youth have demonstrated resilience and determination to succeed despite insurmountable odds.
DEMOGRAPHICS AND IDENTITY
Awareness of the unique cultural, historical, and political characteristics of the 566 nations that comprise the AI/AN communities will contribute to improved care of native youth. Of the 5.2 million people who identify themselves as AI/AN (including other ethnicities) in the 2010 US Census, about 3 million identified themselves as only AI/AN, with approximately 2 million reporting being members of federally recognized tribes.1,2 Membership in a federally recognized tribe is a political identity defined by the citizenship of a sovereign nation. An excellent overview of these complicated regulations can be found at http://www.bia.gov/FAQs/. Federal, State, and Tribal legislation dictates several aspects of the care provided to these communities and populations. AI/AN population has experienced rapid growth, increasing by 39% since 2000.2 Most (78%) AI/AN and their families live outside state or federal lands dedicated for reservation sites. There were over 200 Aboriginal languages before 1492, and more than 150 of these languages are still spoken today.
Although there are similarities with Indigenous Peoples of Canada (First Nations) and Aboriginal Communities of Mexico and Latin America, the term “AI/AN” is used to describe the indigenous people of the continental US. Many other nonfederally recognized groups exist (approximately 100), with many seeking federal recognition of their status including those tribes that are state, but not federally recognized.
HEALTH SERVICES
To effectively and competently provide behavioral and medical services for AI/AN adolescents and young adults (AYAs), it is critical to be cognizant of the diverse demographic and individual identity characteristics of the groups that make up North America’s indigenous populations. AI/AN reside in all the US states and have a younger median age than general population, that is, 22 versus 38 years.2 Slightly more than half reside in urban areas, with the remainder living in rural villages and small rural communities as well as on reservations.3 Although many AI/AN youth are raised and practice traditional lifestyles, the actual rates of participation are unknown. The wide range of differences in culture, geography, spiritual beliefs, politics, and physical characteristics among AI/AN will challenge those who care for these AYAs.
HEALTH DELIVERY SYSTEM
The Indian Health Service (IHS), within the Department of Health and Human Services, annually provides inpatient and outpatient care to more than 2 million AI/ANs, through direct or contract services in 12 regional areas harboring approximately 772 facilities of hospitals, clinics, and satellite centers.3 A relatively new but growing component administers social service and mental health programs. Because of varying and limited resources, service provision can range from exemplary to extremely lacking. Many facilities are not able to provide mental health services due to staff shortages of psychiatrists and other licensed behavioral health providers.3,4
The AI/AN health service delivery system is a complicated mixture of multiple service entities guided and impacted by jurisdictional boundaries that create significant problems in the delivery of needed medical and mental health services. The agencies directly responsible for service provision include the IHS, Bureau of Indian Affairs, as well as the Department of Veterans Affairs. Other federal programs that provide health services include the Department of Justice—Office for Victims of Crime and the Office of Juvenile Justice and Delinquency, Urban Indian Health Organization, state and local service agencies, as well as tribal health programs and traditional healing resources. Moreover, the system of behavioral health services in Indian country (land within an existing Indian reservation under the jurisdiction of the US government) is complex due to an inconsistent mixture of tribal, federal, state, local, and community-based services.5 Often, there is little to no communication across these agencies, complicating an integrated health care network. The proliferation of services within the delivery structure outlined raises a large number of critical questions, the answers to which must guide greater efficacy in care for these youth.6
Treatment of youth varies widely across Indian country from having well-established medical centers to others having no trained service providers within a 200 mile range.3 Lack of psychiatric services for families as well as youth for serious psychiatric disturbance is at a critical level. Eligibility criteria for individuals to obtain any type of health services from the IHS as well as gaining tribal benefits are even more confusing and vary with the provider agency in question. Indeed, this confusion prompted a study sponsored by the US Department of Education, Office of Indian Education, to determine workable definitions of “Indian.”7 Despite the “definition” of Indian study, bureaucratic ambiguity remains, employing tribally defined membership criteria (which differ across tribes), blood quantum (frequently one-fourth, genealogically derived), personal identification/community consensus, and various permutations.8
SPECIAL HEALTH ISSUES
While AI/AN AYAs experience similar health problems to their other ethnic peers, this is one of the highest at-risk subpopulations in the US because of the serious health disparities in a number of areas. In 2010, approximately 25% of AI/ANs lived on reservations or other US Census-defined tribal areas (http://www.census. gov/prod/cen2010/briefs/c2010br-10.pdf). Therefore, it is important for the provider to remember that the majority of AI/AN youth do not live on a federal reservation or on tribal lands, but will experience health conditions and problems at or above the rates reported by those AI/ANs living on tribal areas.
Physical Health
Obesity and Diabetes
The highest prevalence of obesity occurs in AI/AN children, with estimates at 31.2%, suggesting a realistic increase in the rates of obesity among the AYA AI/AN population.9 In addition, the rates of type 2 diabetes among AI/AN youth are nine times the national average.10,11,12 Among AI/AN, the prevalence and incidence of diabetes are much higher in older youth as compared to AI/AN children.11,12 Specifically, among Navajo youth aged 15 to 19 years, 1 in 359 youth have diabetes and 1 in 2,542 develop diabetes annually. While the vast majority of diabetes among Navajo youth with diabetes is type 2, both AYAs with type 1 or type 2 diabetes are likely to experience poor glycemic control, a high prevalence of unhealthy behaviors, and evidence of severely depressed mood.12
Ear Infections and Hearing Loss
In general, AI/ANs have an extraordinarily high rate of middle-ear disease that progresses to chronic suppurative otitis media.13 To date, there is no evidence of a genetic predisposition; however, it is likely that heredity plays an important role in the pathogenesis. Chronic ear infections can cause hearing loss, speech delay and, later, reading problems, and lower educational achievement. In 2005, AI/AN adults (6.4%) were nearly twice as likely as White adults (3.5%) and about four times as likely as Asian adults (1.8%) and Black adults (1.6%) to have trouble hearing or to be deaf.14
As many native youth have moved to metropolitan areas, higher rates of IgE-mediated allergy problems have been reported. This is likely multifactorial and due to genetic, environmental, and socioeconomic factors.
Sexual and Reproductive Health
Prior analyses of high school students suggest that AI/AN teens are more likely to engage in risky sexual behaviors, with reports of early sexual initiation and unintended pregnancy.15
Among AI/AN aged 15 to 19 years, this group has the third highest birth, with rates of 31.1 per 1,000 after Black (39.0 per 1,000) and Hispanics (41.7 per 1,000).16
Birth rates among AI/AN diminished by 11% compared to 2012 data, and the live birth rate for adolescents aged 10 to 14 and 15 to 19 years is 0.4 per and 31.1 per 1,000, respectively.16
Sexual health concerns among AI/AN youth compared to youth who reside in urban areas is striking.
Young urban AI/AN females are having more unprotected first sex and more likely at first sex to have an older partners compared to non-Hispanic White youth.17
A lower proportion of urban AI/AN teens are using contraception overall compared to non-Hispanic White teens.17 • Fewer urban AI/AN who have sex at younger ages are using condoms.17
Urban AI/AN who had unprotected sex in the past year, had sex before age 15, and had more than two sex partners in the past 3 months are 77% more likely to have had an unintended pregnancy than non-Hispanic Whites with the same sexual risk status.17
Sexually Transmitted Infections
Chlamydia rates among AI/AN AYAs are almost 2.0 times higher than the average US rate, with age-specific rates among AI/AN men highest among the 20 to 24 cohort.18
Gonorrhea rates are 4.2 times higher among AI/AN than for similar aged White youth, and in four IHS areas the gonorrhea rate is 1.3 to 6.0 times higher than the national average.18
From 2009 to 2013, the rates of HIV infection for AI/AN have increased to 9.4 per 100,000 and 4.5 per 100,000, respectively.18
Rates for AIDS have remained stable; although once diagnosed with AIDS, AI/AN have the lowest survival rates at 12, 24, and 36 months compared to all other ethnic groups.19
Access to reproductive health services for family planning and prevention of sexually transmitted infections (STIs) are highly variable, especially for those living in IHS areas. Among those living in urban areas, contextual factors including homelessness, isolation from cultural support systems, as well as distrust of medical and public health intuitions also inhibit access to needed sexual and reproductive health services.15 Communities that have mobilized educational and traditional practices have been able to reduce unplanned pregnancies and STIs. For example, a longitudinal intervention conducted among young AI/AN adolescents found that an HIV prevention intervention increased HIV knowledge in the short term, but had no effect on sexual activity compared to those who did not receive intervention.19 Despite this, there was a delay in onset of sexual activity among the youngest adolescents, with the greatest reduction of risk occurring in those receiving the curriculum early.
Substance Misuse and Abuse
Substance misuse and abuse is consistently cited as one of the most critical health concerns facing AI/AN communities.20 Recent data suggest that:
Among adults 18 years and older, AI/AN are 2.1 times more likely to suffer from any drug use disorder when compared to White youth and 3.8 times more likely to experience any drug dependence in the last 12 months.21
The prevalence estimates of adults 18 years and older who met criteria for drug use disorder, drug abuse, or drug dependence in the last 12 months are 4.9, 2.3, and 2.6, respectively, all higher than other race/ethnicities.21
Drinking alcohol before age 13 years is 1.6 times more likely when compared to White youth.22
Binge drinking among AI/AN high school students is less likely when compared to their White peers 0.8 (0.7, 0.9), but 2.0 times more likely when compared to Black youth.22
40.1% report tobacco use, and 12.3% report illicit drug use.23
The adjusted odds of ever having used marijuana, having tried marijuana for the first time before age 13 ears, and using marijuana on school grounds are 1.5 to 2.3 times higher among AI/AN than among White students.22
The adjusted odds of ever having used cocaine, inhalants, heroin, methamphetamines, and ecstasy and having ever injected any illegal drug are between 1.4 and 2.1 times higher among AI/AN youth than among White youth and between 1.9 and 4.2 times higher than among Black youth.22
Recent research suggests that there are important differences in the normative environments for substance use between reservation-based American Indian youth and White youth who resided in the same area and attended the same schools.24 Generally, the risk is higher for AI adolescents. These AI/AN students reported having more peer models for alcohol use compared to their White peers, and among the oldest AI/AN high school students, they perceive
more adults are more accepting of alcohol use by male as compared to female adolescents. This perception of differential attitudes for use also occurs for marijuana use among older AI youth and across all grades for inhalants.
more adults are more accepting of alcohol use by male as compared to female adolescents. This perception of differential attitudes for use also occurs for marijuana use among older AI youth and across all grades for inhalants.
Little is known about factors that serve to protect AI/AN youth against developing a substance use problem.20 For example, conflicting data have been reported about the effect of having a strong belief in the positive power of Indian cultural identity and participation. However, there is consistent evidence that bicultural competence, that is, the ability to alternate between one’s ethnic and White identities in response to contextual cultural cues, decreases the risk for substance misuse.20 In addition, data suggest that the time interval between the 8th and 10th grades is likely to be a critical period of risk for increased marijuana use and may be a key developmental period for monitoring and prevention efforts.24
Mental Health and Suicide
Research on mental health among AYA AI/AN is limited. This is due to the small sample size and heterogeneity of the population. Despite this, the existing literature suggests that AYA AI/AN suffer a disparate burden of mental health problems and high rates of suicide in AI/AN communities.3