Organization
URL
Transplant resources
Be the match
Blood and marrow transplant information network (BMT Infonet)
BMT support online
Explore BMT
National bone marrow transplant link
General resources
American cancer society
Cancer.net
Cancers and careers
Cancer legal resource center
Kids konnected
Lotsa helping hands
LIVESTRONG
Leukemia and lymphoma society
Lymphoma research foundation
Multiple myeloma research foundation
Financial resources
Be the match
Bone marrow foundation
CancerCare, Inc.
Patient advocate foundation
RX assist
5.3 Active Treatment: Inpatient and Outpatient
1.
Issues:
a.
Patient/caregiver anxiety and uncertainty about the HSCT process and outcome
b.
Disruption of patient/family roles
c.
Fears of recurrence, infection , death
d.
Interpersonal stressors (e.g., poor coping strategies, mental health issues, etc.)
e.
Uncertainty about discharge plans
2.
Interventions:
a.
Negotiate personal control
b.
Build on previous experiences/successes
c.
Ongoing self-assessment and training
d.
Educate about outpatient process (e.g., medications, expected appointments, availability of 24-h medical advice/support)
5.4 Immediate Short Term
1.
Issues:
a.
Transition to outpatient setting post HSCT
b.
Increased stress on relationship between patient and caregiver
c.
Caregiver burden and feelings of incompetence
d.
Patient’s dependency and loss of control
e.
Graft-versus-host disease (GVHD) risk in allogeneic recipients
2.
Interventions:
a.
Assess the meaning of uncertainty and stressors
b.
Evaluate burdensome tasks
c.
Assist patient/family to identify and mobilize available resources
d.
Assist in evaluating relationship enhancements
e.
Assure continuation of medical support/management in transitions to outpatient setting
5.5 Long Term/Survivorship
1.
Issues:
a.
Transition back to home, work, and/or previous family roles
b.
Changes in patient’s emotional and physical functions due to complications and long-term effects of HSCT
c.
Fear of recurrence
d.
Feelings of “being different”
2.
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Interventions:
a.
Assess transitional needs and provide referrals to the Department of Vocational Rehabilitation, Social Security Disability, etc.
b.
Evaluate the effect of complications/late effects on relationships
c.
Problem-solve positive steps to build on strengths
d.
Assess and support survival techniques
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